Well, Rebekah is doing great compared to where she was this time last week. She is on room oxygen and her oxygen saturation is in the high 80s which is great for her. She is only getting 2L of flow (the amount of volume being pushed into her lungs through the nasal cannula. She has had to be suctioned every 2-3 hours, but she is tolerating her feedings of breastmilk fortified with soy concentrate very well. The ferrell bag, which allows her tummy to vent air and pressure whenever she needs it to, has been marvelous! She hasn't had a productive reflux (meaning some stomach contents actually came up and out of her mouth or nose) since it was hung. It is just an extension and accessory to her feeding tube and I love it and think she does too. She is not a fan of her nasal cannula, but I understand that most babies aren't. She has been sleeping tons since the ferrell bag was hung which means we finally figured out a way to make her feel her best which makes me happy. She has been able to enjoy some tummy time, though not too much, in her bed. She has been grunting less and has an overall lower respiration rate. All of these things indicate that she is being medically supported as much as she needs to be which makes me and my family very happy. Please continue to pray for her and for my family as we rapidly approach the cath lab on Tuesday.
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