Thursday, February 21, 2013

Cardiologist appointment

Rebekah had a heart echo, chest x-ray, and hip ultrasound today. Her echo showed no changes and the chest x-ray still showed haziness. Her cardiologist is going to present her case to the cardiologist board in the morning and then call me with their decision on what should be done and when. She had a hip ultrasound done because she does not have full range of motion of her hips and legs so her pediatrician thought she might have hip dysplasia. Her hip ultrasound was not yet viewed by the orthopedist, but the sonographer said that her hip measurements were perfect. The only unusual thing was a large chunk of fat between the bones. She said that she's only ever seen that when the hips are dislocated, so she couldn't tell me what the doctor would be able to do for that. So, just one more thing to add to the pile. Just to give you an idea of what we are dealing with specialist-wise, she is followed by all of the following: Speech Therapy, Physical Therapy,  occupational therapy, cardiology, nephrology, ENT, audiology, ophthalmolgy, GI, genetics, orthopedics, a nutritionist, the Kids Eat clinic, plastics, and of course her pediatrician. She is also receiving services through the CDSA and the Extended Care Program both of which help me to coordinate her appointments and get as much as possible done at our home. So far, I seem to have been the one coordinating everything, but I'm hoping that as soon as all the evaluations are finished through the CDSA things will change.

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