Rebekah is now 10lbs even! She is getting SO big! The neurosurgery team is going to continue to observe her fontanel because it seems fairly stable right now and will see her again in 4 weeks. 

Ok

Update

Rebekah has continued to stay happy and her fontanel is about the same as it was when we left the hospital a few days ago. 

Bulging fontanel

Yesterday, Rebekah had a cardiology appointment which went great. The doctor was very pleased and she doesn't go back for a month! She also had a neurology appointment per a referral from Dr. Jewitt to establish a baseline exam for neurology. Her fontanel had been bulging since Monday and had been carefully watched by the at home nurses and myself. The neurologist put in a call to neurosurgery and she was sent to the ED to have a hydrocephalus MRI. The results were that it looked similar to her head CT back in MAY so she was sent home and told to come back in a week. The earliest appointment happened to be the 30th, so that's when we will follow up.

Sneaky

Rebekah has been doing great. I woke up this morning at 3am to add more food to her pump bag and discovered that she had apparently decided that she did not need to wear a diaper and then proceeded to pee all over. She was sound asleep, but I felt that she needed to be cleaned and she didn't wake up until I was almost done changing blankets under her. Memories!

Growing

Rebekah is now 9lb 6oz! Woohoo!

Out already

Well, that was the fastest stay ever. They didn't have the button she needed so she had a straight j placed until the special ordered gj gets in and can be placed next week. Yay for getting to go home so quickly.

Gj tube

Rebekah had to be admitted to the hospital (general floor) because her gj tune came out and the people that put them in only work from 9-5. It won't require surgery or anything like that. She'll just go do to the X-ray floor so they can see where to place it because she already has an access point. She'll get to go home right afterwards. It feels strange to have been admitted for a non-health problem. She just had to have an IV so she could get nutrition while we wait. 

Doing well

Rebekah continues to do well at home. Since her tube surgery, she has not refluxed any bile at all. 

Month+ in pictures

Some people requested More pictures, so here they are. I did not duplicate any from previous posts.

Shortly after being home.

Sitting with Aunt Kate.

Sister Time

Smile caught by sister at home.

Sleeping before Tube Surgery.

Waiting to be called back for tube surgery.

Bright eyed and bushy tailed on July 3.

Sitting with sister shortly before tube surgery.

Sleeping in her car seat today. The nurses started using it so they could rock her more than in her monkey seat and now she loves it, so long as she isn't strapped in.

Yay

She did excellent. Her hearing test is much improved from previously now that they got all the goop out of her ears. ENT said that she must've been in lots of pain every time her head moved from the grayish goop that was trapped in her ears. She still tested mild to moderate hearing loss but they think that in a few weeks that will improve after the inflammation goes away. She will be headed home in a couple hours. Yay!

Waiting

We're waiting in the holding bay.

Tubes

Rebekah has been cleared by both cardiology and pulmonology to have her tube surgery tomorrow. I am told that placing the tubes in her ears will only take 5-10 minutes. Then she will have a hearing test done, but she will not have to be fully under for that. It is a good thing that she is getting them because she has large amounts of fluid in her ears that is turning yellow. This should make her feel tons better when traveling to doctor appointments. So, extra prayers around 7:30 am would be appreciated.