:D

Rebekah is doing well. She has an orthopedist appointment on Tuesday to see how her hips are developing. Her physical therapist was me to ask about braces for her wrists because she turns them in when she's on her tummy so she can't push up. The geneticist wants me to ask him about a slight curve in her spine that she noticed. I guess that will be a busy appointment.

New old pictures

These were taken on August 2nd

Head

Rebekah's neurosurgeon said she does not have hydrocephalus, even though she still has a bulging fontanel, according to the MRI she had on 8/16.

She is holding her head up so well.

Silly Girl

She is so tired! She has been fighting her nap all afternoon. Cardiology called today and scheduled her cath lab to do the angioplasty procedure on her pulmonary valve on September 10. They aren't in a big hurry and neither is she :) .

My sweet angel

Smiley

She is so ticklish!

Excellent

Rebekah has been doing excellent. Since she was sent home in no oxygen by the doctors who looked at her after her MRI and she's stayed off of it (been off for a total of 3 days now), I'd say she is better than she has been in a while. I can't believe she saw at least 5 doctors last week for her various specialty needs. She definitely receives a good deal of medical care. Not to mention, she has nurses at the house 4-5 days a week. Pretty awesome that I can go to the grocery store or take Niya to the park and not have to worry about taking Rebekah out. God has been so good to us. 

All done

My big girl was finished quickly and sent home happy.

Recover

She is in PACU and did so well that she was extubated prior to leaving the MRI room. She's a little glassy-eyed from the Ketamine but is already back to almost no oxygen!

Halfway through

No matter how much I see Rebekah go through, I don't think I will ever be used to seeing her eyes taped shut and a breathing tube down her throat. She is done with her gj replacement and is currently getting her MRI on her brain. She didn't like the gas they tried to use to put her to sleep so they used her good friend Ketamine. When we walked over to MRI, the anesthesiologist said she was doing really well.

:)

Heart echos are so much fun. Cardio appointment was interesting: her cardiologist has decided that, since she is doing so well, she should go ahead with a cath lab procedure within the next month.

Happy

Rebekah is doing well. She gets her "real" gj and has an MRI Friday morning, which will hopefully reveal the reason she has hydrocephalus. Today she enjoyed playing with her keys.

Weight Wait

Rebekah is now 10lbs 6.5oz! Yay for such a big girl! We had our first plastics consultation today for her cleft and he wants to wait until she is a bit bigger and see if she can maybe get some of her heart issues resolved first or if she will need the cleft surgery first.

Doing ok

Rebekah is still doing well.

Pacy is Mine- Hands off

Pictures