The first three weeks at home

Rebekah came home on January 29, 2013 weighing just over her birth weight at 6lb 2 oz. She currently weighs 6lb 8.5oz. That is a weight gain of 6.5 oz in 3 weeks at home versus the 3.5 oz gained in the hospital over the 6.5 weeks she was there. That means I am more proficient at helping my baby gain weight at home, which makes me happy. She takes all feedings and medicines through her g tube and we are working on oral feeding. It takes her a long time to get anything out of a bottle because she has to work harder than most to protect her airway due to her underdeveloped epiglottis. She saw her cardiologist on the 7th of February and he said there were really no changes since discharge. She goes back on the 21st of this month. Last week, after we had started increasing her feedings by 5mL/feed (she is on fluid restrictions due to her multiple heart defects), she started having more trouble breathing and became very congested. I immediately returned her feedings to the original and called the cardiologist who prescribed her a lasiks to help get fluid out of her lungs (we knew it was there because she's had it from birth, along with tachypnea). She is currently taking Prevacid 2x/day for her still uncontrolled reflux.